Deutsch (DE-CH-AT)English (United Kingdom)
My Story

It’s now Mummy’s turn to tell you something:

“My son, Noah, was born on 22nd April 2003, at 9.38 a.m., at the University Gynaecological Clinic in Munich. He was 54 cm tall and weighed 3,410 g

geschichte.jpgWe noticed at a very early stage that Noah wasn’t developing the same way children his age were. He couldn't move, stand up or speak and so on... Moreover, he wasn't very resistant to infections and his renal impairment caused him a lot of illnesses during the first year of his life, resulting in a constant take of antibiotics over longer periods of time.

The numerous blood tests provided no accurate information on any gene defect, metabolic disorders or specific syndromes. We still don’t know what caused Noah’s disability so far. It is a situation that I have accepted and it really didn’t matter then to know what exactly was the cause of all this if this could not help Noah. I was so much more concerned by his health, development and education that the “why” and “how” were not that important. 

Noah went on growing, at his own pace though, but he did. There were constant little improvements that made me feel proud:

03.11.2003            Noah is stretching his hand towards Lily

16.12.2003            Noah is moving his head from left to right

23.03.2004            Noah’s rolling

30.01.2005            Noah is sitting all by himself

The shock, however, came in the summer of 2006: Noah had to have a brain surgery. A tumour (a gem cell tumour) had developed, with a cyst so large had grown inside his head that it was compressing the surrounding tissue and blocking the drainage of the cerebrospinal fluid. Due to the location of the tumour, the surgery would be a very complicated one. "We can't go there again" (the very own words of the doctor treating him). HOWEVER, the surgery, which lasted for eight hours, was a success, and Noah recovered well from it. Ever since, Noah has had to be given regular check-ups, so that every single resurgence of the lump can be immediately detected. We’ll soon go back to hospital for a new check-up including an MRI (nuclear spin) and a lumbar puncture (to tap the spinal fluid) under general anaesthesia. I will only be able to reassure myself once hearing that the result is a negative one.

geschichte2.jpgThe flurry of hospital stays and doctors has been lasting since right after Noah was born, and here are some figures to sum it all up:

20 hospital stays

13 general anaesthesia’s

194 medical appointments and examinations

Nevertheless, those figures can't even describe my worries and fear for my child as well as the fear and pain Noah had to endure.

I always get the feeling that this is somewhat miraculous. Noah has been able to hold on to his cheerful nature; he has been so courageous and still puts his trusts in me and the doctors who treat him.

geschichte3.jpgMy biggest wish is to make dolphin therapy for Noah possible. I’m fully convinced that Noah, thanks to this form of therapy will get new impulses, energy and a strength that will enable him to go on with his life. And maybe he will be able to stand on his own two feet and express his joy to friends with his own words too one day.”

 

 

© Noah Brand & Familie | realisiert durch ausbelichtet.de
English Version by Christina Heger in cooperation with Tom Muirhead, Paul Strikwerda and Floriane Ballige